Funding

An innovative registry-based trials platform to improve clinical care, outcomes, and health policy for children with treatable rare diseases

Period of funding:
2020/4 - 2024/3

Funding source:
Canadian Institutes of Health Research (CIHR), SPOR Innovative Clinical Trials Multi-Year Grant

Principal applicants:
Beth Potter, Ariella Binik, Pranesh Chakraborty, Michal Inbar-Feigenberg, John Mitchell, Martin Offinga, Maryam Oskoui, Sylvia Stockler

Co-applicants:
Saadet Andrews, Craig Campbell, Alicia Chan, Lorne Clarke, Doug Coyle, Jim Dowling, Sarah Dyack, Farah El Turk, Dean Fergusson, Michael Geraghty, Sharan Goobie, Cheryl Greenberg, Robin Hayes, Gloria Ho, Lawrence Korngut, Mariya Kozenko, Anne-Marie Laberge, Thierry Lacaze-Masmonteil, Julian Little, Alex Mackenzie, Jennifer Mackenzie, Jean Mah, Hugh McMillan, Aizeddin Mhanni, Amy Pender, Murray Potter, Suzanne Ratko, Tony Rupar, Chelsea Ruth, Ramona Salvarinova, Andreas Schulze, Kathy Selby, Neal Sondheimer, Rebecca Sparkes, Kathy Speechley, Monica Taljaard, Kednappa Thavorn, Yannis Trakadis, Sarah Turgeon Desilets, Anthony Vandersteen, Jagdeep Walia, Kumanan Wilson, Brenda Wilson

Principal knowledge users:
Chris McCabe, Maureen Smith

Knowledge users:
John Adams, Kim Angel, Isabelle Boudreault, Yan Defosses, Jenifer Gentle, Nicole Pallone, Michèle de Guise

Collaborators:
Nicolas Chrestian, Cam-Tu Nguyen, Xavier Rodrigue, Jiri Vasjar, Nancy Sikich, Nicole Mittmann, Xing Chen



Implementing Sustainable Collection of Core Patient-Oriented Health Outcomes for Pediatric Inherited Metabolic Diseases - a Multi-Stakeholder Workshop

Period of funding:
2019/10 - 2020/3

Funding source:
Ontario SPOR SUPPORT Unit, OSSU EMPOWER Award

Principal applicants:
Beth Potter, Pranesh Chakraborty, Maureen Smith, Nicole Pallone, Nancy Butcher, Sarah Dyack, Michael Geraghty, Julie Irwin, Jennifer Mackenzie, John J Mitchell, Martin Offringa, Murray Potter, Chitra Prasad, Andreas Schulze, Rebecca Sparkes, Sylvia Stockler, Yannis Trakadis



Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives

Period of funding:
2017/4 - 2020/3

Funding source:
Canadian Institutes of Health Research (CIHR), Project Scheme Grant

Principal investigator:
Beth Potter

Co-investigators:
Jamie Brehaut, Eyal Cohen, Sarah Dyack, Jane Gillies, Jeremy Grimshaw, Robin Hayes, Ann Jolly, Sara Khangura, Jennifer Mackenzie, Nathalie Major, John J Mitchell, Stuart Nicholls, Andreas Schulze, Rebecca Sparkes, Kathy N Speechley, Sylvia Stockler, Yannis Trakadis, Clara Van Karnebeek, Jagdeep Walia, Brenda Wilson, Kumanan Wilson

Co-knowledge users:
Isabel Jordan, Nicole Pallone, Maureen Smith

Policy maker:
Mari Teitelbaum

Principal applicant:
Pranesh Chakraborty



Catalyzing registry-based randomized comparative effectiveness trials for inherited metabolic diseases in children: establishing a core outcome set and data collection tools

Period of funding:
2017/4 - 2018/3

Funding source:
Canadian Institutes of Health Research (CIHR), CIHR Catalyst Grant: SPOR Innovative Clinical Trials

Principal investigator:
Beth Potter

Co-applicants:
Alex Mackenzie, Andreas Schulze, Cheryl Greenberg, Doug Coyle, John J Mitchell, Lawrence Korngut, Martin Offringa, Monica Taljaard, Pranesh Chakraborty, Stuart Nicholls

Co-knowledge user:
Maureen Smith

Principal applicant:
Sylvia Stockler

Principal knowledge users:
Nicole Pallone, Tammy Clifford



Emerging team in rare diseases: Achieving the "triple aim" for inborn errors of metabolism

Period of funding:
2012/4 - 2017/3

Funding source:
Canadian Institutes of Health Research (CIHR), Emerging Team Grant

Co-principal investigators:
Beth Potter, Doug Coyle, Jonathan Kronick, Kumanan Wilson, Pranesh Chakraborty

Co-investigators:
Marni Brownell, Alicia Chan, Linda Dodds, Sarah Dyack, Annette Feigenbaum, Deshayne Fell, Michael Geraghty, Cheryl Rockman-Greenberg, Scott Grosse, Astrid Guttmann, Anne-Marie Laberge, Julian Little, Jennifer Mackenzie, Bruno Maranda, Aziz Mhanni, Fiona Miller, John Mitchell, Meranda Nakhla, Murray Potter, Chitra Prasad, Komedi Siriwardena, Rebecca Sparkes, Kathy N Speechley, Sylvia Stockler, Lesley Turner, Hilary Vallance, Brenda J Wilson

English

Funded by (TR3-119195):

© 2015 Canadian Inherited Metabolic Diseases Research Network

Supported by:

             

Last updated: 21-April-2020